The ROS1ders's Fundraiser
In memory of Craig Uthe
Fund the ROS1 research that meant so much to Craig
David Uthe
"In memory of my brother, Craig Uthe, and his passion to help people. Best Hopes! David Uthe"
$1,000
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David Uthe
"Brother Craig, Thanks for all you’ve done for the community! Love, Your Brother David "
$500
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Inmaculada Isabel Garcia Mazario
"Thanks Craig for your help,gracias por estar ahí y acompañarme en este largo camino. Tus mensajes siempre hablaban de esperanza.Best hopes from Madri"
$100
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David Uthe
"To My Brother Craig, It’s the One year Anniversary of your passing. I miss you deeply. You made a difference! Thank you! My Love, Dave"
$900
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Lily Xa
I donated in support of this campaign.
$100
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Holly Breuche
"Craig Uthe was a champion/advocate in leading the fight for more research and understanding of the Ross 1 Gene; served as an online community expert!"
$500
A supporter of The ROS1ders
"Best Hopes to All!"
A supporter of The ROS1ders
"Deepest condolences to Craig’s family and friends. His passing is a huge loss. He was a special person to the ROS1DERs who held him in high regards."
Yang Xiang
"“Best Hopes” from Craig and for everyone!"
$100
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Steve and Sherri Klein
"You fought the fight of the century, and did a lot of good for many!"
$50
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Kathleen Foley
"In memory of my dear friend Craig."
$100
Meredith Trammell
I donated in support of this campaign.
$50
A supporter of The ROS1ders
"Thank you for see of info, care, and support."
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Cindy Kylander Nelson
I donated in support of this campaign.
$25
Hong Zhuang
"Thank you Craig for helping fellow ROS1ders. Rest in peace. You will be missed."
$100
Annetta Zaltzberg
"Craig, forever in our memories!"
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Vicki Uthe
"In honor of my brilliant cousin who was loved by so many. "
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Amanda Helwig
"Craig was an amazing man, with a huge heart and compassionate soul. He will be missed. God speed my friend. "
$100
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David Uthe
"Thank you Craig for what you’ve done for the community and for being my brother."
Karen Weiss
"Thank you Craig for helping so many. You will be missed. Condolences to your family.I wish there was a way to record your brilliant knowledge ."
$100
Help us honor a powerful cancer patient advocate
Sadly, ROS1der Craig Uthe ran out of time on Thursday, Aug 12, after living with ROS1+ lung cancer for over 10 years.
He was one of the first patients to join the original targeted therapy clinical trial for ROS1+ cancer; he also helped to recruit new patients to the trial (he wanted to make sure the trial could be completed). His cancer was relatively slow growing, and his oncologists at University of Pennsylvania and Massachusetts General Hospital (including ROS1 expert clinician and researcher Dr Alice Shaw, and later, Dr Jessica Lin) guided him through several treatment options and clinical trials. He managed fairly well until a couple of years ago.
Craig was well known in the ROS1der community as a source of valuable advice and information. He was able to explain complex medical information in ways we could all understand. It wasn't uncommon for someone to tag Craig in the comments of a posted question to see if he had an insight to share with all of us. Craig also shepherded several people into the world of patient advocacy and research at ASCO, the world's largest oncology conference held annually in Chicago. The picture in the header shows Craig in the 2016 ASCO Patient Advocate lounge with fellow cancer advocates (including Janet Freeman-Daily of The ROS1ders).
We also knew Craig as a relentless pioneer in search of the next method to keep himself alive when the previous one had failed him. His courageous participation in trials and the sharing of his experiences has helped us all to think about our own next steps when the time comes.
Craig always wished other patients “Best Hopes” on their cancer journey. We cannot be sure of the outcome but we go forward with Best Hopes.
“Best Hopes” from Craig!