
Amie Parker's Fundraiser

More research is needed into ROS1+ cancer!
Join me and help make a difference, please give today.
It feels a bit like a game of Frogger
Each potential treatment option is a life-supporting stepping stone in a mad rushing river that is the cancer looking for a chance to sweep me away. I know that each stone has a limited amount of time in which it will support me before it sinks down in the swirling waters, and I must jump to the next stepping stone in my path.
Having a rare form of cancer means that pharmaceutical companies are less likely to invest research dollars into treatments for my particular illness. And having a rare form of lung cancer further decreases the available research dollars.
Shortly after my diagnosis in 2017, I found and joined the ROS1ders, a group of people and their caregivers also dealing with a diagnosis of ROS1+ cancer. The ROS1ders are raising money to support patient-partnered research into our own disease, and we could use your help. Our ongoing projects in need of support include The ROS1 Cancer Model project, the ROS1 Real World Data project, and ROS1+ cancer research grants.
The ROS1 Cancer Model Project enables people who have ROS1+ cancer to donate live cancer cells to make models to accelerate research. Through our efforts since 2017, we have helped to double the number of available cell lines and those cell lines have been shared with research institutions in the U.S., Canada, and Europe.
Our most recent project focuses on Real-World Data, which will develop ways to collect data from patients to get more information about their experiences with treatments and side-effects. In May 2022 we hosted a roundtable featuring an international panel of clinicians, researchers, patients, and caregivers experienced in ROS1+ cancer. Our goal is to create an international ROS1+ cancer Real-World Data project.
In addition, we will be requesting applications for two $75,000 seed grants to fund ROS1+ cancer research projects. With your help, we're so excited to move forward and help those with ROS1+ cancer improve outcomes! Visit our website to learn more about the ROS1ders patient-partnered research at The ROS1ders Global Initiative.
Join me in supporting real change. Even the smallest of donations can add up to make a difference.